Entries tagged with: genetic information
8 result(s) displayed.
EPIC Urges Supreme Court to Protect Genetic Privacy
EPIC has filed a "friend of the court" brief in Maryland v. King, arguing that law enforcement's warrantless collection of DNA is unconstitutional. EPIC's brief describes the "dramatic and unpredictable" expansion of the government's DNA collection over the past decade....
New Study Finds Limits in Deidentification of DNA Samples
A recent paper published in Science reveals that deidentified DNA sequences collected for research purposes can be used to identify the subjects under certain circumstances. According to the article, the information posted by the 1,000 Genomes Project - age, state...
Supreme Court to Review DNA Collection Law
The Supreme Court has agreed to hear Maryland v. King, a challenge to the constitutionality of the State's DNA Collection Act. The Act authorizes law enforcement to collect DNA samples from individuals arrested, but not convicted, for certain crimes. The...
Presidential Commission Urges Privacy Protections for DNA Data
Noting the rapid advances in the use of genetic data, the report of the Presidential Commission for the Study of Bioethical Issues recommended "a consistent floor of privacy protections covering whole genome sequence data regardless of how they were obtained....
EPIC Calls for Genetic Privacy Protections
EPIC submitted comments to the Presidential Commission for the Study of Bioethical Issues, urging the advisory panel to protect genetic privacy in large-scale human genome sequence data. The Commission requested comments pertaining to the "privacy of individuals, research subjects, patients,...
Minnesota Supreme Court Limits Use of Baby DNA
The Minnesota Supreme Court has ruled that the state Genetic Privacy Act limits the use of blood samples collected from newborns. Minnesota initiated the Newborn Screening Program in 1965 in order to screen children for certain metabolic disorders. Over 73,000...
EPIC Urges Court to Limit Pre-Trial DNA Collection from Defendants
EPIC filed a 'friend of the court' brief in US v. Pool. The Ninth Circuit case challenges the constitutionality of a federal law requiring every felony defendant to submit a DNA sample as a condition of pre-trial release. The DNA...
HHS to Explore Scope of Personally Identifiable Health Information, Seeks Public comments
The Department of Health and Human Services plans to modify sections of the federal Privacy Rule, issued under HIPAA. The proposed changes would clarify the scope of privacy and confidentiality of genetic information. More specifically, HHS proposes to modify the...
