The Minnesota Supreme Court has ruled that the state Genetic Privacy Act limits the use of blood samples collected from newborns. Minnesota initiated the Newborn Screening Program in 1965 in order to screen children for certain metabolic disorders. Over 73,000 samples are added to the database every year, but the sample were used for other purposes by the Department of Health and outside research organizations. In overruling a lower courts decision, the state Supreme Court found that the samples are "Genetic Information" under the State Genetic Privacy Act and held that "unless otherwise provided, the Department must have written informed consent to collect, use, store, or disseminate [the blood samples]." For more information, see EPIC: Genetic Privacy.
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Privacy in the Modern Age