A recent paper published in Science reveals that deidentified DNA sequences collected for research purposes can be used to identify the subjects under certain circumstances. According to the article, the information posted by the 1,000 Genomes Project - age, state of residence, and full DNA sequence - used in combination with publicly available genealogy data was enough to narrow the search to a few likely individuals. A Science Policy Forum article concludes that this "reveals the need to re-examine the current paradigms for managing the potential identifiability of genomic and other 'omic'-type data." The President's Commission for the Study of Bioethical Issues recently reviewed the ethical and privacy implications of the use and collection of genetic data. And the Supreme Court is set to hear a case next month involving the warrantless collection and use of genetic information by law enforcement agencies. For more information, see EPIC: Maryland v. King and EPIC: Genetic Privacy.
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Communications Law and Policy
Jerry Kang and Alan Butler