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PRESS RELEASE: EPIC Urges FTC to Investigate Grindr’s Personal Data Practices

In a complaint filed Wednesday, the Electronic Privacy Information Center (EPIC) called on the Federal Trade Commission (FTC) to investigate the popular LGBTQ+ dating app Grindr for its potentially unlawful retention and disclosure of users’ sensitive personal data.
- Consumer Privacy
- Data Protection
- Enforcement of Privacy Laws
- Health Privacy
- Updates
EPIC Encourages Senate HELP Committee to Protect Health Data and Patient Privacy

EPIC submitted comments to the U.S. Senate Committee on Health, Education, Labor, and Pensions (HELP) in response to its Request for Information related to patient privacy and health data privacy. EPIC provided resources and recommendations about the privacy and data security risks unique to health information, as well as the importance of centering data minimization principles in the collection and sharing of health data, including types of location data, biometric data, and genetic information.
- Consumer Privacy
- Cybersecurity
- Data Protection
- Data Security
- Health Privacy
- Updates
EPIC Commends FTC Rulemaking to Expand Health Breach Notification Rule, Urges Expansion

In comments to the Federal Trade Commission, EPIC applauded the proposed modifications to the Health Breach Notification Rule (HBNR).
- Cybersecurity
- Data Protection
- Data Security
- Health Privacy
- Updates
EPIC Commends FTC’s Vitagene Genetic and Health Data Settlement

In comments to the Federal Trade Commission, EPIC commended the FTC for taking enforcement action against direct-to-consumer genetic testing company Vitagene for unfair and deceptive trade practices involving genetic and health information.
- Cybersecurity
- Data Protection
- Data Security
- Health Privacy
- Updates
EPIC Commends Proposed HIPAA Reproductive Health Safeguards, Calls on HHS to Further Strengthen Rule

In comments to the Department of Health and Human Services, EPIC praised HHS for proposing new reproductive health safeguards for the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule and called on the agency to expand those protections.
- Data Protection
- Health Privacy
- Updates
Washington State Legislature Passes Health Data Privacy Law

The Washington State Legislature finalized passage Monday of the My Health My Data Act (MHMDA), the first state-level health data bill of its kind in the U.S. The bill now heads to Governor Jay Inslee’s desk for his signature to become law.
- Data Protection
- Health Privacy
- Privacy Laws
- U.S. State Privacy Laws
- Updates
EPIC Commends FTC’s BetterHelp Health Data Settlement

In comments to the Federal Trade Commission, EPIC commended the FTC for taking enforcement action against online counseling company BetterHelp for unfair and deceptive trade practices involving health data.
- Data Protection
- Health Privacy
- Updates
FTC Fines Online Therapy Company BetterHelp $7.8 Million for Sharing Health Data

Today the FTC announced an enforcement action against BetterHelp, fining the online counseling company $7.8 million and banning it from sharing consumer health data for advertising purposes.
- Consumer Privacy
- Data Protection
- Health Privacy
- Updates
EPIC, Coalition Urge HHS to Abandon Database Tracking HIV PrEP Users

Rights urged the agency to reverse plans that would require recipients of free HIV Pre-Exposure Prophylaxis (PrEP) to submit information to a database maintained by HHS.
- Data Protection
- Government Databases
- Health Privacy
- Surveillance Oversight
- Updates
FTC Fines GoodRx $1.5 Million for Unauthorized Disclosure of Health Information
- Consumer Privacy
- Health Privacy
- Updates

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