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HHS Issues Final Rule in an Important Effort to Safeguard Reproductive Privacy
The Department of Health and Human Services published a final rule this week strengthening privacy protections for reproductive health information. The rule extends the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule by prohibiting regulated entities from using or disclosing personal health information for the “mere act of seeking, obtaining, providing, or facilitating reproductive health care.” This is an important reproductive privacy safeguard for millions of Americans, particularly in the wake of the U.S. Supreme Court’s decision invalidating the constitutional right to abortion in Dobbs v. Jackson Women's Health Organization.
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Cybersecurity
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Data Protection
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Data Security
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Health Privacy
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Updates
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EPIC, National Consumer Law Center Urge Massachusetts Supreme Judicial Court to Limit Harmful Tracking and Disclosure of Private Health Information
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Consumer Privacy
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Data Protection
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Health Privacy
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Updates
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EPIC Applauds Proposed FTC Order With Blackbaud, Urges Stronger Protections for Donor Privacy
EPIC submitted comments in response to the FTC’s proposed order with Blackbaud, a donor management software company used by nonprofits, which failed to implement basic cybersecurity measures and failed to appropriately notify impacted consumers when a months-long breach occurred.
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Consumer Privacy
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Cybersecurity
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Data Protection
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Data Security
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Health Privacy
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Updates
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Pharmacies Warrantlessly Disclose Medical Records to Law Enforcement, Congress Finds
Today the Washington Post published the results of a congressional investigation that revealed how most major pharmacy chains in the US regularly share customers’ medical records with law enforcement.
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Data Protection
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Health Privacy
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Updates
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PRESS RELEASE: EPIC Urges FTC to Investigate Grindr’s Personal Data Practices
In a complaint filed Wednesday, the Electronic Privacy Information Center (EPIC) called on the Federal Trade Commission (FTC) to investigate the popular LGBTQ+ dating app Grindr for its potentially unlawful retention and disclosure of users’ sensitive personal data.
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Consumer Privacy
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Data Protection
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Enforcement of Privacy Laws
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Health Privacy
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Updates
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EPIC Encourages Senate HELP Committee to Protect Health Data and Patient Privacy
EPIC submitted comments to the U.S. Senate Committee on Health, Education, Labor, and Pensions (HELP) in response to its Request for Information related to patient privacy and health data privacy. EPIC provided resources and recommendations about the privacy and data security risks unique to health information, as well as the importance of centering data minimization principles in the collection and sharing of health data, including types of location data, biometric data, and genetic information.
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Consumer Privacy
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Cybersecurity
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Data Protection
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Data Security
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Health Privacy
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Updates
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EPIC Commends FTC Rulemaking to Expand Health Breach Notification Rule, Urges Expansion
In comments to the Federal Trade Commission, EPIC applauded the proposed modifications to the Health Breach Notification Rule (HBNR).
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Cybersecurity
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Data Protection
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Data Security
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Health Privacy
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Updates
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EPIC Commends FTC’s Vitagene Genetic and Health Data Settlement
In comments to the Federal Trade Commission, EPIC commended the FTC for taking enforcement action against direct-to-consumer genetic testing company Vitagene for unfair and deceptive trade practices involving genetic and health information.
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Cybersecurity
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Data Protection
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Data Security
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Health Privacy
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Updates
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EPIC Commends Proposed HIPAA Reproductive Health Safeguards, Calls on HHS to Further Strengthen Rule
In comments to the Department of Health and Human Services, EPIC praised HHS for proposing new reproductive health safeguards for the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule and called on the agency to expand those protections.
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Data Protection
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Health Privacy
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Updates
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Washington State Legislature Passes Health Data Privacy Law
The Washington State Legislature finalized passage Monday of the My Health My Data Act (MHMDA), the first state-level health data bill of its kind in the U.S. The bill now heads to Governor Jay Inslee’s desk for his signature to become law.
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Data Protection
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Health Privacy
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Privacy Laws
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U.S. State Privacy Laws
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Updates
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