Health and Reproductive Privacy

A Health Privacy ‘Check-Up’: How Unfair Modern Business Practices Can Leave You Under-Informed and Your Most Sensitive Data Ripe for Collection and Sale

June 5, 2025

• Artificial Intelligence and Human Rights

• Commercial AI Use

• Consumer Privacy

• Data Protection

• Health and Reproductive Privacy

• Analysis

CFO Dive: Regeneron agrees to purchase bankrupt 23andMe, protect data

May 19, 2025

• Consumer Privacy

• Cybersecurity

• Data Brokers

• Data Minimization

• Data Protection

• Data Security

• Health and Reproductive Privacy

• News

The Record: 23andMe sold for $256 million as buyer pledges to comply with existing privacy policies

May 16, 2025

• Consumer Privacy

• Data Protection

• Health and Reproductive Privacy

• News

Concern over Potential 23andMe Data Sale Highlights Weaknesses of State Privacy Laws 

May 2, 2025

While the United States’ lack of a comprehensive federal privacy law allows privacy harms to continue threatening Americans daily, 23andMe’s recent bankruptcy shines a spotlight on the problem.

• Data Protection

• Health and Reproductive Privacy

• Privacy Laws

• U.S. Privacy Laws

• Analysis

The Markup: How California sent residents’ personal health data to LinkedIn

April 28, 2025

• Consumer Privacy

• Data Protection

• Data Security

• Government Records & Privacy

• Health and Reproductive Privacy

• Platform Accountability & Governance

• News

NPR: NIH autism study will pull from private medical records

April 23, 2025

• Data Protection

• Data Security

• Government Records & Privacy

• Health and Reproductive Privacy

• News

Boston Herald: Congressmen sound alarm over data privacy following 23andMe bankruptcy

April 19, 2025

• Consumer Privacy

• Data Minimization

• Data Protection

• Data Security

• Health and Reproductive Privacy

• News

Los Angeles Times: Congressmen sound alarm over data privacy following 23andMe bankruptcy

April 17, 2025

• Consumer Privacy

• Cybersecurity

• Data Brokers

• Data Minimization

• Data Protection

• Data Security

• Enforcement of Privacy Laws

• Health and Reproductive Privacy

• News

Bankrupt Genetic Data: Minimizing and Privacy-Protecting Data from the Start

April 14, 2025

The scenario now at hand—an untold number of buyers able to potentially grab up the genetic data troves collected and analyzed by 23andMe—is a forceful reminder of the need for better data privacy and security protections. Nothing can eliminate the possibility that a company collecting data goes bankrupt. But companies and policymakers can and should do better in mitigating the risks from any potential bankruptcy-data fallout ahead of time.

• Consumer Privacy

• Cybersecurity

• Data Minimization

• Data Protection

• Data Security

• Health and Reproductive Privacy

• Analysis

Virginia Updates Its Consumer Privacy Law to Include New Health and Reproductive Data Privacy Protections

April 7, 2025

• Data Protection

• Health and Reproductive Privacy

• Privacy Laws

• U.S. State Privacy Laws

• Updates