Tag: Health Privacy

  • Pharmacies Warrantlessly Disclose Medical Records to Law Enforcement, Congress Finds

    Today the Washington Post published the results of a congressional investigation that revealed how most major pharmacy chains in the US regularly share customers’ medical records with law enforcement.

    • Data Protection

    • Health Privacy

    • Updates

  • PRESS RELEASE: EPIC Urges FTC to Investigate Grindr’s Personal Data Practices

    In a complaint filed Wednesday, the Electronic Privacy Information Center (EPIC) called on the Federal Trade Commission (FTC) to investigate the popular LGBTQ+ dating app Grindr for its potentially unlawful retention and disclosure of users’ sensitive personal data.

    • Consumer Privacy

    • Data Protection

    • Enforcement of Privacy Laws

    • Health Privacy

    • Updates

  • EPIC Encourages Senate HELP Committee to Protect Health Data and Patient Privacy

    EPIC submitted comments to the U.S. Senate Committee on Health, Education, Labor, and Pensions (HELP) in response to its Request for Information related to patient privacy and health data privacy. EPIC provided resources and recommendations about the privacy and data security risks unique to health information, as well as the importance of centering data minimization principles in the collection and sharing of health data, including types of location data, biometric data, and genetic information.

    • Consumer Privacy

    • Cybersecurity

    • Data Protection

    • Data Security

    • Health Privacy

    • Updates

  • EPIC Commends FTC Rulemaking to Expand Health Breach Notification Rule, Urges Expansion

    In comments to the Federal Trade Commission, EPIC applauded the proposed modifications to the Health Breach Notification Rule (HBNR).

    • Cybersecurity

    • Data Protection

    • Data Security

    • Health Privacy

    • Updates

  • EPIC Commends FTC’s Vitagene Genetic and Health Data Settlement

    In comments to the Federal Trade Commission, EPIC commended the FTC for taking enforcement action against direct-to-consumer genetic testing company Vitagene for unfair and deceptive trade practices involving genetic and health information.

    • Cybersecurity

    • Data Protection

    • Data Security

    • Health Privacy

    • Updates

  • Data Minimization: Bolstering The FTC’s Health Data Privacy Authority

    Among the categories of personal data collected seemingly without restriction in the United States, consumer health data is both particularly sensitive and particularly lucrative. In recent years, there has been a dramatic increase in telehealth, health and fitness apps, and other online health products, resulting in an enormous volume of health data collection and abuse that falls outside of the narrow protections of the Health Insurance Portability and Accountability Act (HIPAA).

    • Consumer Privacy

    • Data Protection

    • Enforcement of Privacy Laws

    • Health Privacy

    • Analysis

  • EPIC Commends Proposed HIPAA Reproductive Health Safeguards, Calls on HHS to Further Strengthen Rule

    In comments to the Department of Health and Human Services, EPIC praised HHS for proposing new reproductive health safeguards for the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule and called on the agency to expand those protections.

    • Data Protection

    • Health Privacy

    • Updates

  • Washington State Legislature Passes Health Data Privacy Law

    The Washington State Legislature finalized passage Monday of the My Health My Data Act (MHMDA), the first state-level health data bill of its kind in the U.S. The bill now heads to Governor Jay Inslee’s desk for his signature to become law.

    • Data Protection

    • Health Privacy

    • Privacy Laws

    • U.S. State Privacy Laws

    • Updates

  • EPIC Commends FTC’s BetterHelp Health Data Settlement

    In comments to the Federal Trade Commission, EPIC commended the FTC for taking enforcement action against online counseling company BetterHelp for unfair and deceptive trade practices involving health data.

    • Data Protection

    • Health Privacy

    • Updates

  • FTC Fines Online Therapy Company BetterHelp $7.8 Million for Sharing Health Data

    Today the FTC announced an enforcement action against BetterHelp, fining the online counseling company $7.8 million and banning it from sharing consumer health data for advertising purposes.

    • Consumer Privacy

    • Data Protection

    • Health Privacy

    • Updates