Tag: Health Privacy

Somebody Spilled the Genes: 23andMe’s Downturn Highlights Insufficient Privacy and Data Security Safeguards for Consumer Genetic Data

December 5, 2024

As 23andMe likely heads towards bankruptcy or sale, many consumers are understandably concerned: what will happen to their genetic data?

• Consumer Privacy

• Data Brokers

• Data Minimization

• Data Protection

• Health and Reproductive Privacy

• Analysis

Massachusetts’ Top Court Rejects Privacy Arguments, Holds that Hospital Website Tracking is Not a Wiretap

November 1, 2024

• Consumer Privacy

• Data Protection

• Health and Reproductive Privacy

• Online Advertising & Tracking

• Updates

EPIC Testifies in Support of DC Consumer Health Information Privacy Protection Act

October 31, 2024

EPIC Counsel Suzanne Bernstein testified before the DC Council Committee on Health on Oct. 17 in support of Bill 25-0930, the Consumer Health Information Privacy Protection Act (CHIPPA).

• Data Protection

• Health and Reproductive Privacy

• Privacy Laws

• U.S. State Privacy Laws

• Updates

Wristwatched: A New Frontier of Health Monitoring in Prisons

August 22, 2024

For over two decades, states have used electronic monitoring, or e-monitoring, to track and limit the movements of individuals on parole or pre-trial through wearable technology.

• Data Protection

• Face Surveillance & Biometrics

• Health and Reproductive Privacy

• Surveillance Oversight

• Analysis

EPIC Praises CFPB’s Proposal to Ban Medical Debt from Credit Reports 

August 13, 2024

In comments to the Consumer Financial Protection Bureau, EPIC expressed support for the CFPB’s proposed rules to largely prohibit the inclusion of medical debt information on credit reports. The proposed rules would protect the privacy of consumers’ sensitive medical information and promote fairness and accuracy in credit reporting.

• Consumer Privacy

• Data Brokers

• Data Protection

• Health and Reproductive Privacy

• Updates

The Role of Digital Privacy in Ensuring Access to Abortion and Reproductive Health Care in Post-Dobbs America

June 13, 2024

The Supreme Court’s Dobbs decision overturning Roe v. Wade in 2022 unleashed a reproductive health crisis in the U.S. The country also faces a data privacy crisis. The two are intrinsically related, increasing the risks that people face to access reproductive health care.

• Data Protection

• Health and Reproductive Privacy

• Analysis

FTC Finalizes Health Breach Notification Rule Modifications, Improving Health Privacy Safeguards for Consumers

May 6, 2024

The Federal Trade Commission recently finalized changes to modernize the Health Breach Notification Rule (HBNR), expanding its scope and improving its efficacy to address health privacy and data security risks that fall outside of HIPAA.

• Cybersecurity

• Data Protection

• Data Security

• Health and Reproductive Privacy

• Updates

Alive and Kicking: Washington State’s My Health My Data Act Goes into Effect Today

April 1, 2024

Today Washington State’s landmark My Health My Data Act (MHMD) goes into effect, marking a new chapter in state regulation of health data. In an age where more and more of our health-related data is being managed through apps, devices, and online services, MHMD imposes strict privacy obligations on companies and creates a private right of action to bolster enforcement.

• Cybersecurity

• Data Protection

• Data Security

• Health and Reproductive Privacy

• Privacy Laws

• U.S. State Privacy Laws

• Analysis

EPIC, National Consumer Law Center Urge Massachusetts Supreme Judicial Court to Limit Harmful Tracking and Disclosure of Private Health Information

March 21, 2024

• Consumer Privacy

• Data Protection

• Health and Reproductive Privacy

• Updates

Pharmacies Warrantlessly Disclose Medical Records to Law Enforcement, Congress Finds

December 12, 2023

Today the Washington Post published the results of a congressional investigation that revealed how most major pharmacy chains in the US regularly share customers’ medical records with law enforcement.

• Data Protection

• Health and Reproductive Privacy

• Updates