Tag: Health Privacy

Bankrupt Genetic Data: Minimizing and Privacy-Protecting Data from the Start

April 14, 2025

The scenario now at hand—an untold number of buyers able to potentially grab up the genetic data troves collected and analyzed by 23andMe—is a forceful reminder of the need for better data privacy and security protections. Nothing can eliminate the possibility that a company collecting data goes bankrupt. But companies and policymakers can and should do better in mitigating the risks from any potential bankruptcy-data fallout ahead of time.

• Consumer Privacy

• Cybersecurity

• Data Minimization

• Data Protection

• Data Security

• Health and Reproductive Privacy

• Analysis

Virginia Updates Its Consumer Privacy Law to Include New Health and Reproductive Data Privacy Protections

April 7, 2025

• Data Protection

• Health and Reproductive Privacy

• Privacy Laws

• U.S. State Privacy Laws

• Updates

EPIC Joins If/When/How, Reproductive Justice Coalition in Purl v. HHS Amicus Brief

March 25, 2025

• Data Protection

• Health and Reproductive Privacy

• Privacy Laws

• U.S. Privacy Laws

• Updates

EPIC Encourages HHS to Promulgate Updated Cybersecurity Requirements to Protect Electronic Personal Health Information

March 11, 2025

• Cybersecurity

• Data Protection

• Data Security

• Health and Reproductive Privacy

• Updates

Somebody Spilled the Genes: 23andMe’s Downturn Highlights Insufficient Privacy and Data Security Safeguards for Consumer Genetic Data

December 5, 2024

As 23andMe likely heads towards bankruptcy or sale, many consumers are understandably concerned: what will happen to their genetic data?

• Consumer Privacy

• Data Brokers

• Data Minimization

• Data Protection

• Health and Reproductive Privacy

• Analysis

Massachusetts’ Top Court Rejects Privacy Arguments, Holds that Hospital Website Tracking is Not a Wiretap

November 1, 2024

• Consumer Privacy

• Data Protection

• Health and Reproductive Privacy

• Online Advertising & Tracking

• Updates

EPIC Testifies in Support of DC Consumer Health Information Privacy Protection Act

October 31, 2024

EPIC Counsel Suzanne Bernstein testified before the DC Council Committee on Health on Oct. 17 in support of Bill 25-0930, the Consumer Health Information Privacy Protection Act (CHIPPA).

• Data Protection

• Health and Reproductive Privacy

• Privacy Laws

• U.S. State Privacy Laws

• Updates

Wristwatched: A New Frontier of Health Monitoring in Prisons

August 22, 2024

For over two decades, states have used electronic monitoring, or e-monitoring, to track and limit the movements of individuals on parole or pre-trial through wearable technology.

• Data Protection

• Face Surveillance & Biometrics

• Health and Reproductive Privacy

• Surveillance Oversight

• Analysis

EPIC Praises CFPB’s Proposal to Ban Medical Debt from Credit Reports 

August 13, 2024

In comments to the Consumer Financial Protection Bureau, EPIC expressed support for the CFPB’s proposed rules to largely prohibit the inclusion of medical debt information on credit reports. The proposed rules would protect the privacy of consumers’ sensitive medical information and promote fairness and accuracy in credit reporting.

• Consumer Privacy

• Data Brokers

• Data Protection

• Health and Reproductive Privacy

• Updates

The Role of Digital Privacy in Ensuring Access to Abortion and Reproductive Health Care in Post-Dobbs America

June 13, 2024

The Supreme Court’s Dobbs decision overturning Roe v. Wade in 2022 unleashed a reproductive health crisis in the U.S. The country also faces a data privacy crisis. The two are intrinsically related, increasing the risks that people face to access reproductive health care.

• Data Protection

• Health and Reproductive Privacy

• Analysis