Tag: Health Privacy
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Bankrupt Genetic Data: Minimizing and Privacy-Protecting Data from the Start
April 14, 2025
The scenario now at hand—an untold number of buyers able to potentially grab up the genetic data troves collected and analyzed by 23andMe—is a forceful reminder of the need for better data privacy and security protections. Nothing can eliminate the possibility that a company collecting data goes bankrupt. But companies and policymakers can and should do better in mitigating the risks from any potential bankruptcy-data fallout ahead of time.
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Consumer Privacy
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Cybersecurity
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Data Minimization
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Data Protection
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Data Security
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Health and Reproductive Privacy
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Analysis
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Virginia Updates Its Consumer Privacy Law to Include New Health and Reproductive Data Privacy Protections
April 7, 2025
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Data Protection
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Health and Reproductive Privacy
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Privacy Laws
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U.S. State Privacy Laws
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Updates
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EPIC Joins If/When/How, Reproductive Justice Coalition in Purl v. HHS Amicus Brief
March 25, 2025
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Data Protection
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Health and Reproductive Privacy
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Privacy Laws
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U.S. Privacy Laws
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Updates
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EPIC Encourages HHS to Promulgate Updated Cybersecurity Requirements to Protect Electronic Personal Health Information
March 11, 2025
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Cybersecurity
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Data Protection
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Data Security
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Health and Reproductive Privacy
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Updates
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Somebody Spilled the Genes: 23andMe’s Downturn Highlights Insufficient Privacy and Data Security Safeguards for Consumer Genetic Data
December 5, 2024
As 23andMe likely heads towards bankruptcy or sale, many consumers are understandably concerned: what will happen to their genetic data?
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Consumer Privacy
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Data Brokers
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Data Minimization
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Data Protection
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Health and Reproductive Privacy
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Analysis
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Massachusetts’ Top Court Rejects Privacy Arguments, Holds that Hospital Website Tracking is Not a Wiretap
November 1, 2024
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Consumer Privacy
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Data Protection
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Health and Reproductive Privacy
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Online Advertising & Tracking
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Updates
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EPIC Testifies in Support of DC Consumer Health Information Privacy Protection Act
October 31, 2024
EPIC Counsel Suzanne Bernstein testified before the DC Council Committee on Health on Oct. 17 in support of Bill 25-0930, the Consumer Health Information Privacy Protection Act (CHIPPA).
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Data Protection
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Health and Reproductive Privacy
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Privacy Laws
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U.S. State Privacy Laws
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Updates
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Wristwatched: A New Frontier of Health Monitoring in Prisons
August 22, 2024
For over two decades, states have used electronic monitoring, or e-monitoring, to track and limit the movements of individuals on parole or pre-trial through wearable technology.
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Data Protection
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Face Surveillance & Biometrics
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Health and Reproductive Privacy
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Surveillance Oversight
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Analysis
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EPIC Praises CFPB’s Proposal to Ban Medical Debt from Credit Reports
August 13, 2024
In comments to the Consumer Financial Protection Bureau, EPIC expressed support for the CFPB’s proposed rules to largely prohibit the inclusion of medical debt information on credit reports. The proposed rules would protect the privacy of consumers’ sensitive medical information and promote fairness and accuracy in credit reporting.
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Consumer Privacy
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Data Brokers
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Data Protection
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Health and Reproductive Privacy
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Updates
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The Role of Digital Privacy in Ensuring Access to Abortion and Reproductive Health Care in Post-Dobbs America
June 13, 2024
The Supreme Court’s Dobbs decision overturning Roe v. Wade in 2022 unleashed a reproductive health crisis in the U.S. The country also faces a data privacy crisis. The two are intrinsically related, increasing the risks that people face to access reproductive health care.
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Data Protection
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Health and Reproductive Privacy
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Analysis
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